Årsrapporter från CF-registret

Nedan finner du en lista över CF-registrets årliga rapport, som publiceras varje höst och innehåller data, analyser och trender. Rapporterna avser det föregående kalenderåret.

Årsrapport 2022. Omfattar data från det nationella kvalitetsregistret tom 2022-12-31. Christina Krantz, Isabelle de Monestrol och Anders Lindblad.

Årsrapport 2021. Omfattar data från det nationella kvalitetsregistret tom 2021-12-31. Christina Krantz, Isabelle de Monestrol och Anders Lindblad.

Årsrapport 2020. Omfattar data från det nationella kvalitetsregistret tom 2020-12-31. Isabelle de Monestrol och Anders Lindblad.

Årsrapport 2019. Omfattar data från det nationella kvalitetsregistret tom 2019-12-31. Isabelle de Monestrol och Anders Lindblad.

Årsrapport 2018. Omfattar data från det nationella kvalitetsregistret tom 2018-12-31. Isabelle de Monestrol och Anders Lindblad.

Presenterade abstracts med data från CF-registret

European CF Society Conference, Vienna (2023)

Factors related to higher level of physical activity in Swedish CF-patients – A registry based cross sectional study. Ersson, K. et. al.

European CF Society Conference, Rotterdam (2022)

Hypersensitivity to antibiotics in patients with cystic fibrosis. Poster presentation, 7-11 juni 2022. Kowalik A, Gülen T, de Monestrol I.

European CF Society Conference, Online (2021)

Correlation between care allowance levels and antibiotic treatment at the Stockholm CF centre. E Falk, B Karpati and F Karpati.

European CF Society Conference, Lyon (2020)

The swedish CF Registry facilitates the evaluation of ORKAMBI® treatment. Ericson P, Hedborg A, de Monestrol I, Hjelte L, Lindberg U, Hansen C, Krantz C, Gilljam M, Lindblad.

Decreased performance of airway clearance and physical exercise with age in the Swedish CF population - what's the solution? Rodriguez Hortal C, Wilhelmsson S, Törnberg A, Lannefors L, Hoel L, Ersson K, Dennersten-Kvist U, Wallin K, Mårtensson M, Hedborg A.

Most adult patients with cystic fibrosis at Stockholm Cystic Fibrosis Centre have a full-time or part-time occupation. Möller M, Al Shakirchi A, Backström Eriksson L, Hjelte L, Törnberg A, Durand De Monestrol D'Esquille I.

Results of 2017-2019 screening of self-concept among children 6-12 years old at the three largest CF centers in Sweden. Bergenmar Ivarsson E, Laine C, Larsson P, de Monestrol I, Lindblad A.

Decrease of faecal calprotectin in adults after initiation of Orkambi: A registry-based study. Gilljam M, Hedborg A, de Monestrol I, Lindberg U, Krantz C, Hjelte L, Lindblad A.

Development of mental health quality outcome measures in the Swedish Cystic Fibrosis Registry – pitfalls and possibilities. Backström Eriksson L, Laine C, de Monestrol I, Lindblad A, Bergenmar Ivarsson E, Järvholm S. 

Mental health changes in patients starting Orkambi treatment? A first-year follow-up. Backström Eriksson L, de Monestrol I, Laine C.

Results of 2018’s mental health screening among 156 adults at two cystic fibrosis centres in Sweden. Jarvholm S, Gilljam M, de Monestrol I , Backstrom Eriksson L .

North American Cystic Fibrosis Conference, Online (2020)

Hypersensitivity to antibiotics in patients with cystic fibrosis – a single centre experience. Poster presentation, 21-23 oktober 2020. Kowalik A, Gülen T, de Monestrol I.

North American Cystic Fibrosis Conference, Nashville (2019)

Physical exercise and lung function in Swedish children and adolescents with Cystic Fibrosis - a population-based study. Mårtensson M, Lundkvist Josenby A, Sahlberg M.

The national Swedish Cystic Fibrosis Registry is a useful tool for evaluation of Orkambi in a real-life setting. Hedborg A, Hollander A, de Monestrol I, Hjelte H, Lindberg U, Hansen C, Krantz C, Gilljam M, Lindblad A.

Sweden’s Learning Health Network System Approach for Follow Up of New Therapies: First Year with Lumacaftor/Ivacaftor Lindblad A, Hedborg A, Elidottir H, de Monestrol I, Hjelte L, Ericson P, Krantz C, Lindberg U, Silfverplatz Å, Lindblad S, Hager A, Montan M.

Adult Cystic Fibrosis International Workshop, Milano (2019)

Fungal prevalence and diversity in Stockholm CF-center, a 16 years retrospective study. Al Shakirchi M, Klingspor L, Bergman P, Cedermark K, Hjelte L, de Monestrol I.

European CF Society Conference, Liverpool (2019)

Joint disease in Swedish patients with cystic fibrosis. Larsson M, Lindblad A, De Monestrol I, Krantz C, Lindberg U, Elidottir H, Megadimou V, Gilljam M.

European CF Society Conference, Belgrade (2018)

Outcome of mental screening among Swedish adolesents with Cystic Fibrosis. Laine C, Bergenmar Ivarsson E, Larsson P.

Monitoring CF lung disease in school age Children with CT. Svedberg M, Gustafsson P, Lindblad A.

Presence of Candida dubliniensis in the Cystic Fibrosis respiratory tract was associated with a significant decline in lung function - results from a 16 years retrospective study. Al Shakirchi M, de Monestrol I, Hjelte L.